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Time to Listen to SCD

Pathways To Trust has partnered with Rare Advocacy Movement (RAM), a network of rare disease patient advocates, to tailor communication training events that address the needs of sickle cell patients and their caregivers. The SCD patient population has always had a significant need for improved healthcare provider communication, and that need has morphed into a monumental hurdle for SCD patients who are seeking treatment for relief of agonizing pain. Lately, many HCPs have approached these patients with the assumption they are drug seekers, which adds an additional layer of suffering to an already challenging condition.

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To counteract this trend, Pathways To Trust has developed an initiative called Time to Listen to SCD. This program includes a web-based community to allow SCD patients around the country to allow SCD patients around the country to share their stories about their experiences with the healthcare industry. These experiences wll form the basis for the centerpiece of the initiative: HCP training events throughout the US that help healthcare professionals who encounter sickle cell patients to develop the communication tools to interact more compassionately.

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